I didn’t know what it was all my life, doctors didn’t care. I just dealt with it.
When I was 13 we moved to Florida. I felt gravity more there. The heat was awful. I developed a post-nasal drip the first week we were there (allergies and sinus junk just ramped up from there for the rest of my so far life.)
Feeling heavier as if gravity was pulling was how it was. Heat did me in, felt horrible and sick and faint.
Next school year was 9th, I had PE at noon, running the 1 mile on a circular track. Full sun. Every time, I could not do it and somehow got to the bathroom to throw up and diarrhea myself to death by twisty innards and all that explosion stuff outwardly every time. Every PE class. I couldn’t stand and had to lay on the floor until I cooled down. Shaky and weak as a dead person. Well this wasn’t going to cut it for me. I ended up staying home before long, before all the holiday stuff started. I refused to go to school. In mid January a truant officer came to our house to check up on me. “I’m here, stay here reading all the time.” He was pleased to hear it as long as I was home, he was cool with it.
(The next year I went to a new school.)
We were visiting my Mother’s Sister, my Aunt, and that was always nice, but overwhelming. One morning I was sitting at the table holding a glass of orange juice and the then everything went black and when I was conscious again I didn’t have the glass. I had dropped it, crashing glass and juice all the while I was blacked out.
What happened? Not understood, but not important either. Thanks adults.
When I was 11 I had a physical exam for getting older as a female. Mentioned headaches. “That’s just genetic” and brushed it off. No help at all.
By the time I was 16 I had full tilt migraines and didn’t know what to call them until in my Twenties.
In college there was a blood drive. My friend and I both gave at the same time, dutiful with all we were suppose to do before, during, and after. I was later alone in my dorm, most people were gone for holiday, I fell asleep and woke up and couldn’t stand up. I fell out of bed and crawled out into the hall mewing for help. I was ghostly white with red blotches all over my legs and arms.
Someone eventually helped me, but no one knew what was going on and overall no one did anything about it (no doctors, I felt I didn’t matter). That took many long days to recover from.
I had gut issues and those would leave me sicker than a dog.
I got married, and lived in a/c and life was much better finally overall. Heat was horrible when I was in it still. Allergies were getting worse and worse, and guts, and migraines.
If I was too active my feet would hurt so much. If I couldn’t help but take off my shoes in the car, they weren’t going on again any time that day. So couldn’t do anything but go home or sit in the car while everyone else went out of it to do something.
That kept going and all my issues included palpitations going up stairs, BP high numbers when it was checked. Wiped out after a day of errand running. Migraines triggered frequently for what reason, never knew.
I had three kids, then I lost one early on, then one more kid. 4 kids and the stress of always on, I had seasons and storms of a shit life. When I felt all right I was allergic, with limited energy, gut issues and migraines.
I thought I was ADHD and an introvert. Well, just simply a contradiction of AuDHD and POTS and some more ridiculous pairings.
Once I turned 50 in 2016 I couldn’t go to even just Costco and home again without being wiped out for three days.
Out of breath feeling was a frequent one for me. Going up the stairs, standing too long, sitting up too fast. UGH
I didn’t drink much water in my 50’s I tried to avoid it. Spent a lot of time in my twenties on drinking lots of coffee every day.
I hated the taste and texture of water and found eventually that Fiji is what I could stand. My family tells me how I drink too much of it every day and it’s too expensive. What? It’s what I can take in, if you had to drink as much as I feel I need to… I hate it, but do it anyway the past couple of years. Cause I’m thirsty and need to. It’s like I get hydrated from drinking water, then parched minutes later.
I quit caffeine this month, only was having one cup of coffee for at least two years, and any I got from Excedrin, and green tea.
Now I just have one cup of swiss water method of decaffeinated coffee. I grind my own beans in a manual grinder.
I don’t drink green tea now, and try to not take Excedrin unless I need it. Well, migraines don’t care to space themselves out, so every 24 to 36 hours I get a dose.
All I try is to get my migraines to back down to minimal, or go away, but nothing helps entirely.
Sometimes my migraines are killer type. Man so hard to deal with, but I live through it.
Most migraines I get are lesser these last few years.
But I get More and More minor migraines and almost never know when it’s going to raise it’s monster head above me. So now I have Eletriptan, but it’s hard knowing which time is right for it, only 9 pills a month, I have more horrid migraines than that a month. I have minor ones that can be very annoying and I want to get away from them. It’s a no-win situation.